NEIGHBOR Survey

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Study ID# 19-00757 Version Date: 04/16/2024

Lead Researchers: Jessica Robinson-Papp, MD, and Monica Rivera-Mindt, PhD

Contact: 212-241-0190 or paired.project@mssm.edu

The Mount Sinai Neurology Department has many studies funded by the National Institutes of Health, which seek to understand brain health and find new treatments for different neurological conditions.

The purpose of this research is to develop a network of patients who are interested in participating in observational studies or clinical trials related to brain health or different types of neurological and brain conditions. You are being asked to complete this survey because you either have an interest in brain health or neurological or brain conditions and would like to be contacted in the future for research studies or clinical trials that you might be eligible for.

Being in a research study is completely voluntary. You can choose not to be in this research study. You can also say yes now, and change your mind later. Deciding not to be in the research study, now or later, will not affect your ability to receive care at Mount Sinai Medical Center.

If you agree to take part in this research, you will be asked to provide your name and your contact information and the type of neurologic or brain condition you have and any information you would like to share. Your participation in this study will take about ten minutes to complete the survey. We expect 1000 people will take part in this research study.

You can choose not to answer any question you do not wish to answer. You can also choose to stop taking the survey at any time. You must be 18 years old to participate. If you are younger than 18 years old, please stop now.

The possible risks to you in taking part in this research are:
The possibility of a loss of privacy

The possible benefits to you for taking part in this research are:
You may be eligible for research that will involve your condition. To protect your identity only Drs. Robinson-Papp and Rivera-Mindt and their teams will have access to this network, and your data will only be used to offer you participation in research. You are not obligated to participate in any study, and you can remove your information from this network at any time by calling the research team at 212-241-0190 or by e-mailing the study coordinators at paired.project@mssm.edu

If you have questions about this research, please contact the Researcher, 212-241-0190. You can also call the Program for Protection of Human Subjects Office at 212-824-8200.
Thank you.

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